Rare Patient Voice

About Rare Patient Voice

Rare Patient Voice connects patients and family caregivers with paid research about living with medical conditions. Studies can include surveys, phone interviews, focus groups and online discussions. Both rare and non-rare conditions are represented. Compensation, duration and participant criteria are listed per study. Invitations depend on research needs. Its site also lists clinical trial opportunities, which have separate requirements and should be considered individually.

Who can apply

You must meet the patient or caregiver criteria for the study. The company recruits in the United States, United Kingdom, Canada, Germany, Italy, France, Spain, Australia and New Zealand, with narrower eligibility for individual projects. Check each study for its condition, age, location and participation requirements. Remote participation is available for some studies; others may require attendance. Payment timing should be confirmed with the study organizer.